The eRegistries Initiative is dedicated to increasing the availability and timely use of routine maternal and child health data in order to improve the quality of care and health outcomes around the world.
The eRegistries Initiative
The eRegistries Initiative collaborates with partners globally to provide training and technical assistance to establish, build and manage electronic health registries utilizing the eRegistries framework. The framework addresses critical issues including legal and ethical concerns, software considerations, evidence-based indicator selection, training, and dissemination strategies that pertain to maternal and child health.
Our vision is a world in which health data is collected safely, systematically, and routinely and used effectively and efficiently to achieve the highest quality of health and well-being for women and children around the world.
Our mission is to strengthen the global capacity to systematically improve data quality and use by providing tools that support ethical, safe, legal, culturally appropriate, and efficient health registries that focus on maternal and child health.
The eRegistries Strategy
The eRegistries strategy prioritizes country ownership and collaboration to promote long term sustainability and scalability. The eRegistries toolkits are designed to be adapted and customized to each unique setting. The eRegistries Initiative strategic features include:
- Safe, secure and ethical data collection, management, and storage
- Evidence-based reproductive health indicators derived from the WHO essential interventions
- Open source data collection platforms
- Timely utilization of data by health care providers, women, families and public health officials
The quality of maternal and child health data in countries with the highest burden of maternal mortality is often compromised by inaccurate, incomplete, and inconsistent data. Poor data quality diminishes trust which, in turn, may result in a data culture where health care providers are not motivated to invest in data collection and data users discount data validity.
Consequently, expensive data collections waste resources, time and information that could otherwise benefit of women and children. eRegistries are designed to maximize data use and address common challenges of health information systems so that data are consistently and methodically utilized to inform decision making.
eRegistries and the global health agenda
Although significant progress has been made towards the Millennium Development Goal (MDG) targets for maternal and child mortality reduction, preventable maternal and child deaths still occur each year. To achieve the new Sustainable Development Goals (SDGs), accurate and timely information is needed that clearly defines the remaining problems, challenges and needs.
Global health agencies, such as the WHO, World Bank, and UNICEF, have recognized the value and need for more and better health data as demonstrated by the following list of publications and reports:
- Measurement and Accountability for Results in Health Summit
- Global Civil Registration and Vital Statistics Scaling up Investment Plan 2015–2024
- Monitoring maternal, newborn and child health: understanding key progress indicators
- Commission on Information and Accountability for Women’s and Children’s Health
- A World That Counts: Mobilising The Data Revolution for Sustainable Development
The eRegistries Framework
A framework for the establishment, management, use, evaluation and accountability of electronic health registries for maternal and child health was originally funded by Norad (called the ‘Harmonized Reproductive Health Registries Intiative’) and was a collaborative effort among researchers globally. Formative research entailed:
- A systematic literature review of maternal and child health registries in low and middle income countries;
- A legal review of legislation, regulations and guidelines relevant to registries in select countries;
- Web-based surveys assessing the status of maternal and child health registries in low and middle income countries;
- An expert panel review of existing and novel indicators for the WHO essential interventions.